The PDA Way

This week has been up and down.  First the good stuff. I had a call on Tuesday from the SEN team at the Local Authority to tell me the refusal to assess Little C for an EHCP had been overturned and he will now be assessed! (yey!) So we won’t have to appeal and go to tribunal (for the moment anyway). However …..they might assess him and then decide not to issue him with an EHCP. In which case we’d be back at appeal and tribunal stage again. So, this weeks news is a huge step in the right direction but still a long way to go. Other good stuff - the weather! I just love the sun. Loads of nice walks and Little C playing in the back garden and in the paddling pool.    So nice to get him out of the house.  Then the rubbish stuff. Little C has struggled in the heat and things have felt more difficult. He’s been angrier and more irritable than usual. Stammering and ticcing such a lot too. Bedtimes have been particularly difficult and I’ve felt some of the hopelessness that I...

I’d always planned on doing a post about Little C’s tics, however he’s had a good run of a few months of not really having any. But now they’re back!  We first noticed a tic when he was around three and he started doing a weird twisting stretching thing with his arms. After a month or two it disappeared. Since then there have been a whole range of different tics including sniffing (but outwards), twisting his head, scrunching his nose. Most don’t seem to bother him but the twisting his head one did and one night h e said ‘Why can’t stop I doing it?’ That was upsetting but luckily that particular tic didn’t last long. The tics at the moment are throat clearing (he’s had this one for a few years now). This morning he’s been doing it about every 5-10 seconds. His new one is with his eyes - it’s so not much an eye roll but opening his eyes really wide and looking to each side (every 2 minutes or so). This eye one started a few weeks ago and is still going strong. Right now he’s repeati...