A wobbly week



This week has been up and down. First the good stuff. I had a call on Tuesday from the SEN team at the Local Authority to tell me the refusal to assess Little C for an EHCP had been overturned and he will now be assessed! (yey!) So we won’t have to appeal and go to tribunal (for the moment anyway). However …..they might assess him and then decide not to issue him with an EHCP. In which case we’d be back at appeal and tribunal stage again. So, this weeks news is a huge step in the right direction but still a long way to go.

Other good stuff - the weather! I just love the sun. Loads of nice walks and Little C playing in the back garden and in the paddling pool.  So nice to get him out of the house. 



Then the rubbish stuff. Little C has struggled in the heat and things have felt more difficult. He’s been angrier and more irritable than usual. Stammering and ticcing such a lot too. Bedtimes have been particularly difficult and I’ve felt some of the hopelessness that I used to feel 12 months ago.

I’ve been worrying quite a lot this week too. About how we would even get him to a new school if they suggest one and how they’re even going to be able to assess him when he doesn’t go to school.

Our six weekly meeting with the Early Help team is on Monday and I feel pressure to have made progress in some of the problem areas (pressure I’ve put on myself I should add). He hasn’t been able to do his 15 mins per day school visits, refuses to discuss toileting, still won’t sleep in his bed. I feel like a failure and find myself trying to justify to everyone why we’re no further forward. 

But then I attended a webinar last night called ‘burnout recovery’ which completely flipped my negative thoughts on their head! And I’m glad to say I’M BACK! 


Thank goodness for this webinar to get me back on track and confirming that we’re doing great and we’re doing right and I feel 100% confident in the decisions we’re making. Keeping the home environment low-demand, being sensory aware and using all our knowledge of PDA to allow Little C to do things as and when he’s able to. We might not be making obvious or visible progress but Little C is definitely happier and we are in a better place than we were 12 months ago. So 12 months from now well, who knows?

Last nights course was the 8th course that I’ve done to learn more to help Little C. Loads were free, some had a charge. Every single one I’ve done has been totally worth it. If I haven’t learnt anything new, they’ve given me a much needed boost like last nights did. I’ve booked on another called ‘EOTAS - a parents guide’. EOTAS is Education Otherwise Than At School. I don’t want to get my hopes up - but this sounds promising!





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