A diagnosis - finally!

Last week, after a long time on the diagnostic pathway, Little C finally received a formal diagnosis of Autism. ADHD was mentioned but we’re not clear if he has this diagnosis yet. The appointments were quite gruelling for all of us. Once we get the report I think we’ll have a better idea of what the actual diagnosis(s) is/are.

Medication has been recommended. Two different drugs. 

I’ve wondered whether to share this or whether there are some things that should be kept to ourselves. The subject of medicating a 6 year old is really quite personal and controversial. But as this issue is causing me a lot of turmoil, and I’ve already shared a lot anyway, I’ve decided to include it in my blog. I also hope, as always, that it may help other families in the same situation.

The consultant foresees Little C needing ADHD medication. There are issues as to which one as Little C is so small and underweight and ADHD meds can suppress appetite. Little C also has tics which are currently quite severe and the stimulant drugs can worsen tics. The consultant wants him to have an ECG first too - no idea how we’ll get him to have this done. 

The second drug is the one that is causing us some serious worry. It’s a scary and potent drug with lots of side-effects. We are surprised that this particular drug has been suggested so soon as there appears to be others that are way less scary. I’m sure there are reasons why the consultant feels this drug is suitable for  him.

So we’ve not agreed to it and at the moment we’re actually leaning towards a ‘no’. I have more questions to ask. The consultant was brilliant and nothing feels rushed. Little C needs an ECG first which will be a challenge in itself. Then he has some behaviour therapy with CAMHs which will be ongoing. On top of all that - how will we even get him to take medication? He won’t even take Calpol!

I’ve been doing some research on other medications and even some alternative/natural medicine (which again is controversial so I might not say too much about that!) But I’m open-minded and not ruling anything out or rushing into anything.

So lots happening and it’s been a busy few weeks. Little C’s EHCP is back at panel this week. Reports and assessments are all complete so this panel decides if he will be issued an EHCP. Fingers crossed! 

If anyone has experience or advice on the medication subject, I’d love to hear. Drop me a message or DM. 




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